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This is a story about two babies who were born on the same day, but on different sides of the world. One a boy, Billy born in Australia and the other a girl, Nevaeh born in the USA.Even though they were worlds apart, they were both born with a rare condition that occurs in ONE in 5000 births. It is called an Imperforate Anus, also known as an Anorectal Malformation. This means they either didn't have a bowel opening or it was in the wrong place.This is their story of how they developed a special relationship with "Sneaky the Poop."
Greg gives a brilliant and even personal at times to live with persistent Faith, personal Forgiveness and peaceful Freedom. Inspiring and thought provoking this book keeps readers contemplating what the true joys of life are. What's the price for confidence? If a healthy lifestyle through daily exercise gave you not only physical longevity, but mental fortitude what would that be worth to you?
The story of beer and brewing in Aotearoa from Speights to Parrotdog and beyond.
This book describes with raw honesty and deep emotion the journeys that families go on when their child is born with an Imperforate Anus (IA) also known as Anorectal Malformation (ARM). It is a rare congenital condition that affects ONE in 5000 births which is very rarely talked about or known in the wider community. It reveals the many difficulties both emotionally and physically that babies, children and adults living with IA/ARM endure. It is a book filled with love, courage, resilience and hope. It shows the importance of having access to good information and medical staff who are compassionate and knowledgeable and the unnecessary suffering that occurs when that is unavailable.Above all it recognises that the IA/ARM community looks after each other and is playing an increasingly important role in providing sound information and support. The response of the IA/ARM community from all around the world to Greg's requests for stories for this book, is a powerful example of how the community is working together. This book is a must read for health professionals and teachers who play such a significant role in the lives of each IA/ARM child, adolescent and adult. It will also enlighten extended families, friends and the wider community about this relatively unknown condition. Reading the stories is inspiring and heart wrenching. It is about babies, children and adults who have strong spirits and big hearts. It is also about the power of love as parents battle their way through the often confusing health systems and the relief when unanswered questions are finally resolved. All proceeds of sale of this book after publishing costs go directly to the work of the ONE in 5000 Foundation. It was established in 2017 s a not-for-profit charity organisation to provide assistance and support to anyone affected by the IA/ARM which has an incidence rate of about 1:5000 births in Western communities. (Higher rates in other communities). ONE in 5000 Foundation is a fully registered with the Australian Charities and Not-for-profits Commission. ABN: 18393396753
Greg Ryan details his journey through the trials of physical deformity and deep depression. A story of human courage, loneliness, enlightenment and joy. He was born 55 years ago, by rights he could have died within the first few days as he had been born without an anal opening, with a rare condition called Imperforate Anus, also known as Anorectal Malformation. Fortunately for his family he was born in Melbourne Australia where the Royal Children's Hospital was located and due to the incredible skills of their surgeons, they could perform marvellous life-saving surgery which gave him a chance of life.But he and his family could never have prepared for the physical and psychological anxiety that was to be his life's companion. But there was hope, and Greg tells that story candidly and sensitively in his autobiography "A Secret Life - Surviving a Rare Congenital Condition", which was first released in August 2016, and has been sold in over 50 countries worldwide and opened a dialogue for those born with this congenital condition, and also to assist families and medical professionals in understanding the lived experience.This is an updated version with an extra 40 pages which includes added information provided my Greg's mother and also a valuable contribution from the pioneer of IA/ARM surgery, Dr Alberto Pena.
Providing a timely explanation for the origins of and continued support for US policies of non-recognition toward Cuba and Iran, this book demonstrates the links between IR theory and US foreign policy through the lens of the English School concept of International Society.
This book examines the emergence and growth of cricket in relation to diverse patterns of European settlement in New Zealand - such as the systematic colonization schemes of Edward Gibbon Wakefield and the gold discoveries of the 1860s.
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