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This handbook was written as a guide and a reference book for parents and children of all ages living with von Hippel-Lindau (VHL), a hereditary cancer syndrome that increases one's risk of having tumors of the eye, brain, spinal cord, kidneys, pancreas, and adrenal glands. It was specifically designed for parents to read to their children so they could answer any questions their children might have about VHL. It can also be used as a starting point for discussions about how VHL has affected the family. The book will give children a basic idea about VHL and how they can use this information to live and manage their health. It may also be helpful for families dealing with any hereditary cancer syndrome. Written and reviewed by a team of parents and professionals, and illustrated with charming drawings and photographs from children with VHL, their siblings and friends, the book is upbeat and hopeful, helping children understand what is happening, and leaving them with a sense of empowerment.
Lillian Levin Kahn was born in 1917 in Chicago and received her bachelors from the College of Jewish Studies. She began writing poems in her early 20s and continued to do so throughout her life. In 1943, she met and married a newly ordained Rabbi (Eli J. Kahn) and immediately moved from her native Chicago to his first job as an army chaplain in Columbus, Georgia. As Rabbi's wife, or Rebbitzin, she usually went by the Hebrew name she chose as her own, Chavatzelet, after the Song of Song's Lily of the valley. She followed her husband's 12 moves to new congregations during the next 59 years until his final retirement, packing up everything and recreating a home in each new city for her husband and four children. As Rebbitzen, she often played the role of Educational Director, Teacher and Program Manager, writing poems and plays for both children and adults to present at holiday celebrations. She led a public life, always representing her husband, the congregation, and the entire religion. But privately, for herself, she wrote poems. Only in her poetry could she express her deepest feelings. When, at age 96, she moved to assisted living, she asked her family to save only one thing from her home, her most treasured possession -- a small suitcase filled with poems she had written throughout the years, many of which tell the story of her inner life.
Barbara Rubin-Katz shares memories of her childhood, growing up in Western Massachusetts, before and after the Second World War, through her graduation from high school. She also describes her family's adventurous move from Springfield to Tucson, Arizona, in 1948. Born in Springfield, she has been a life-long musician and artist. She is best known for her sculpture and assemblages. Her figurative works focus on the feminine form and are evocative of the impressionist school with a modern uplifting aspect. She is also known for her wall sculptures which include art deco designs and flights of fancy utilizing found objects. Her works have been widely shown in galleries, universities, and juried art shows throughout New England.
A book of poems and art. Timeless beauty conveyed into present age ...Love and passion wrapped in care for all -- to inspire, to enlighten... In mystical and sensual poems the poet expresses his love of God and his beloved Lutien, his Tinuvyel, his Beloved. "A long time ago in an age long forgotten there was a world where light and darkness twisted their own stories among human beings. And from that world I bring you memories, sufferings, joy, sadness, but most of all - Love. Love, that power of endless life and change. And now it comes from that long-forgotten world, reaching into eternity."
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